PA 16-142—sHB 5587

Human Services Committee

AN ACT CONCERNING RECOMMENDATIONS FOR SERVICES PROVIDED TO CHILDREN AND YOUNG ADULTS WITH DEVELOPMENTAL DISABILITIES

SUMMARY: This act establishes within the Council on Medical Assistance Program Oversight a standing subcommittee to (1) study and make recommendations to the council on children and adults who have complex health needs and (2) advise the council on the specific needs of these children and adults. The subcommittee consists of council members, appointed by the council's chairpersons, and others who must serve terms set by the chairpersons. By law, the council (1) advises the social services commissioner on the planning and implementation of the HUSKY Health program's health care delivery system and (2) monitors planning and implementation of Medicaid care management initiatives.

Under the act, the subcommittee must submit two reports (see below) to the governor; the council; and the Children's, Human Services, and Public Health committees on the efficacy of support systems for children and young adults age 21 or younger who have developmental disabilities, with or without co-occurring mental health conditions. The first report is due by July 1, 2017 and the second by January 1, 2018.

For purposes of completing the two reports, the act requires the following individuals to be on the subcommittee:

1. the child and healthcare advocates, or their designees;

2. a family or child advocate;

3. the executive directors of the Council on Developmental Disabilities and the Connecticut Association of Public School Superintendents, or their designees; and

4. an expert in diagnosing, evaluating, educating, and treating children and young adults with developmental disabilities.

For the act's purposes, “developmental disability” means an individual's severe, chronic disability as defined by federal law (see BACKGROUND).

EFFECTIVE DATE: July 1, 2016

REPORT REQUIREMENTS

First Report

The report due by July 1, 2017 must include:

1. metrics to evaluate the quality of state-funded services to children and young adults age 21 or younger with developmental disabilities, with or without co-occurring mental health conditions, that can be used by state agencies that fund the services;

2. statutory changes needed to promote effective service delivery for those children, young adults, and their families; and

3. any other changes needed to address identified gaps in services for those children, young adults, and their families.

Second Report

The report due by January 1, 2018 must assess:

1. available early intervention services for those children and young adults;

2. the system of community-based services for them;

3. the treatment provided by congregate care settings that provide residential supports and services and how the quality of care is measured; and

4. how the State Department of Education, local school boards, departments of Children and Families and Developmental Services, and other appropriate agencies can collaborate to improve educational, developmental, medical, and behavioral health outcomes for those children and young adults and reduce the number at risk of entering institutional care.

BACKGROUND

Developmental Disability

Under federal law, a “developmental disability” is generally a severe, chronic disability that:

1. is attributable to a mental or physical impairment or combination of impairments;

2. manifests before age 22;

3. is likely to continue indefinitely;

4. results in substantial functional limitations in at least three areas of major life activity, including self-care, receptive and expressive language, learning, mobility, self-direction, independent living capacity, or economic self-sufficiency; and

5. reflects the individual's need for a combination and sequence of special, interdisciplinary, or generic services, individualized supports, or other assistance that is (a) of lifelong or extended duration and (b) individually planned and coordinated.

A child from birth to age nine, inclusive, who has a substantial developmental delay or specific congenital or acquired condition, may be considered to have a developmental disability without meeting three or more of these criteria if, without services and supports, he or she has a high probability of meeting those criteria later in life (42 U. S. C. 15002(8)).

OLR Tracking: KMD; DC; VR; bs